'RHOC' alum Meghan King reveals son, 2, has hypotonic cerebral palsy: 'I expected it'
Meghan King's son Hart was diagnosed with hypotonic cerebral palsy. The former Real Housewives of Orange County stars shared the news on their blog in honor of World Cerebral Palsy Day. King, who has documented her 2-year-old son's health journey on social media, told fans she was relieved when she suspected this diagnosis because he was "a few months old".
“I expected it to hit me hard. But that was not the case. It didn't hit me hard at all. In fact, I was relieved, ”she wrote on Tuesday. Think about it this way: It was as banal as going through life every day without putting the lid on the toothpaste and eventually I had to put the lid on. It felt so simple and right. ... This is the once horrific diagnosis that I knew came from the fateful day I Googled the right thing, and it hit me like a truck: [Cerebral Palsy]. ... I just knew. "
Meghan King (formerly Meghan King Edmonds) shares her son Hart's diagnosis of cerebral palsy and what she learned. (Photo: Getty Images)
While King wasn't surprised by the diagnosis, her estranged husband, Jim Edmonds, is not. The two have been embroiled in a bitter divorce for almost a year, and a rep for the former MLB star says Edmonds did not learn that his son had hypotonic cerebral palsy.
"Jim is unaware of such a diagnosis, and if it is true at all, it is completely incomprehensible and utterly shameful that Meghan should announce this on social media without first discussing it with him," said Steve Honig, Edmonds representative , across from Yahoo Entertainment. King and Edmonds share daughter Aspen, who will be 4 next month, and 2-year-old twins Hayes and Hart.
Cerebral palsy (CP) is a group of disorders that affect movement and muscle tone or posture, according to the Mayo Clinic. It is caused by damage that occurs to the immature brain as it develops, usually before birth. The word "hypotonic" means low muscle tone.
According to King, "Hart's brain is not paralyzed, but there are some areas of damage." She noted that he was "struggling with balance" and stated that there is "a very wide range of CP and it is neither shameful nor sad to end up anywhere on that range."
Last year King announced that Hart had "irreversible brain damage" called PVL, which is often a precursor diagnosis to CP. On her blog post, the reality star explained how she insisted that doctors give her son an MRI because she "knew something was atypical" from the moment he was born.
"He was crying so much that even the nurses didn't know how to calm him down. And he sucked shallowly and often on my chest. His limbs were stiff. He was easily startled. He learned later than Hayes to focus his eyes. And. And." although he was growing at a typical rate, laughing and playing with toys on time, all I knew was something was different, "she wrote." All the doctors and therapists told me I was just an overly cautious mother. I thought I would Losing your mind, but I insisted on an MRI. "
King believes that giving Hart various treatments and therapies during those 15 months between diagnoses was critical to his development. She urged readers to advocate “early intervention” if they suspect that “something might be atypical”.
"He has reached a certain plateau in his physical progress, which can be very daunting for a therapy mom like me," said King, but added that he "does all of the typical things for a child his age," like climbing stairs and Hitting baseball from a tee. She said his therapy goals had "shifted from physical therapy to speech therapy".
"Hart's new diagnosis really doesn't mean anything else or change anything. It just allows him to continue receiving the therapy he's already receiving," she says, adding, "Hart will lead a full, independent life. He will face challenges, that his siblings won't have, and alternatively, they'll face challenges he won't, but we just don't know what those are yet. Diagnosis isn't limiting, humans are. "
King continued, “I choose to celebrate what Hart does differently and raise my children with encouragement to live their lives aloud and never let their differences be narrowed or defined. I hope that Hart can inspire others with a "diagnosis" not to hide it for fear of judgment, but to wear it as a badge of honor, a source of pride for all the hard work most of us will never understand. That's why we're celebrating World Cerebral Palsy today. Hart received that very special 1 in 500 diagnosis just in time to celebrate! And we will celebrate! "
The former Bravo star concluded by urging parents to advocate early intervention if they believe their child is on the CP spectrum.
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